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Trev,
The group site has 18 recipes in the database
and if the 190 or so members of this group would
only put one recipe in the database what a wealth
of ideas that would be.
Brady

Carbs work best for me at lunch - digestion is at its
peak then. I usually try to not eat carbs at night. I
wake up looking a bit puffy and don't feel very clear.
Deb
--- Trevor Wills <santosha_traveller@...

My rosacea is much more under control now thanx Brady,
I rarely get the violent sensations all over my face, I use permethrin
(quellada) once a fortnight (for demodex) and eat about as much carbs a day as
yourself (150 gms). Pustules and papules are now usually kept at bay, (and are
managed quite successfully with lavender and apple cider vinegar), I now feel
like I can head off flare-ups with large and regular protein dominant meals, If
I've eaten too many carbs and my face (and sometimes trunk) begins to flare, I
go back to the 30gms diet and I am usually fine within 2 or 3 days, and I can
start increasing the carbs again. Im no longer riddled with fear of losing my
nose to infection or rhinophoma (which was certainly looking like I was going in
that direction until this diet). So thanx-a-lot for the REAL dermatological
advice, as opposed to the drugs I'm now no longer dependent on. At 29, the
thought of being trapped on anti-biotics the rest of my life was very
frightening for me, as they always knocked me round and drained me of
vital energy.
I love my occasional soy and stevia coffees now too!
Can you make nice low-carb cakes/muffins with stevia I wonder??? Any
suggestions would be appreciated :)
Trev :)

Trev,
Losing fat on this diet is, of course, secondary to controlling
rosacea. But since you have brought the subject up, I have
mentioned on page 37 of the Rosacea Diet what to do. This
has come up before and there are suggestions in this group
what to do, and I should keep a list of which message numbers,
but alas, I have not. Most rosacans have no problem with losing
a few founds of fat but there are a few like you that just can't
afford to lose any more weight. Eat as much protein as you
want. Eat as much cheese and cream as you want. Remember
the rule: 30 days, 30 grams of carbs, No sugar. After that,
eat whatever you want. As to morning or night, your choice.
I don't think it matters unless you are active during the day.
Then I think morning is better since you need the energy and
protein can provide you with energy once your metabolism
changes over from an insulin dominant metabolism to a
glucagon dominant metabolism. The Rosacea Diet will give
you a glucagon dominant metabolism ( pages 60 - 84).
By the way how is your rosacea on this diet?
Brady

A lot of diets people go on involve having carbs only before 2pm each day, Im
guessing this is so the energy is burnt up by the end of the day and not put on
as fat. So would that mean if we rosaceans ate carbs only in the evening, it
would be put on as fat instead of being processed in such a way that overwhelms
our capilleries, I was just wondering what others thought was the best time to
eat carbs. I know wiht this diet I could certainly do with a little more fat :)
trev

Larry,
Thanks for understanding.
I am still giving the DMSO 10% a chance
and will do that for some time now. If I
find that it isn't working then I will probably
try the Zhongzhou Ointment over the
Demodexsulutions. But after the Zhongzhou Ointment
I would probably consider it. Hopefully
others will be inspired to try it since you
have had success and report here what
happened. More reports mean more
validity.
Brady

Brady:
I just wanted to say that you should not feel bad about wanting to
recoup some of your costs by selling your diary. Everyone should
know that you have contributed time, expertise and money way more
than you have ever received from this dreaded disease. You have made
it possible for everyone involved to communicate and find some real
answers to our dilema. I read your diary and it dosent sound like
that med did the job for you. I know that you are very aware of what
some of us are doing and talking about on this site so Im curious ...
Are you going to try Demodexsolutions? I have tried to remain
objective here and not to jump the gun and scream "cure" but if
anyone deserves to be cured its you and after one month of treatment,
I would highly recommend that you give these meds a shot.
larry

I was wondering what you guys do to prevent flushing when you wake
up in the morning?...I have a fan blowing on me, but that does not
seem to work...Maybe it's because I sleep on my sides and the heat
generates on my face all night...I was considering maybe looking at
a tempurpedic mattress, and teaching myself to sleep on my back....
Any thoughts?

Hi Noreen, no I sure havent. At least not yet!
Re: Exfoliating Scrub
They look like great products, have you tried any of their other
products on your skin?
Noreen

They look like great products, have you tried any of their other
products on your skin?
Noreen
--- In rosacea-diet-users-support-

Exfoliating Scrub
This exfoliating scrub was recommended to me
by my naturopathic dr, who said it was crucial to
get rid of the top layers of dead skin, so that healthier new
skin can come to the surface, for healing.
The crub can be found at jakare.com or by calling 1-877-jakare
Its called Lavender & Spearment Exfoliating Cream. 4 oz $28
Use 2-3 times a week, leave on for 5-10 minutes and wash off.
Jar will last you 4 months!
The ingredients are:
~Floral waters, apricot kernal oil, jojoba meal & wax beads,
vegetable glycerine, olives, oat protein, wheat germ oil, shea
butter, sea algae, colloidal oatmeal, sesame oil, aloe vera, gingsing
and meadowsweet extracts, papaya enzymes, lecithin, grapefruit
extract, essential oils, Vit A, C &E
It's all natural, and remember, if you cant eat it, dont put ito n
your face!! :o)
PERSONAL NOTE: I have used this scrub for a while, I LOVE IT,
and will never go without it!

Larry,
I am in the states. Where did you get the permethrin? Did you get a
prescription? What was the name of the med? I am trying to get this med to no
avail.
sue
Larry <lcm@...
Hey DD,
You look pretty clear in your pic. Have you tried backing off on the
accutane? You would be the one to know if you need it but I have
eliminated everything internal with the exception of vitamins and
herbs and feel no need for anything else... but then again I know it
can be a careful mix at times. My face is near perfect now, but I
have continued to have a lot of redness and itch on my neck and
chest. This all occured in the past year which was a particularly
stressful time for me and coincided with the general worsing of my
facial condition before I started the Chinese meds. Any way I have
continued to itch a lot in this area despite the Chinese meds. so
this morning I applied permethrin again and I must say that stuff is
amazing. I feel like I warned everyone away from it before by making
the statement that it was "very drying", but it really may be of
significant value. My neck and chest calmed down immediately. The
medical abstract that I got the idea from stated that the patients
were cured of rosacea with two weeks of a twice a day application. I
would think once a day for a month would be better to insure the
newly hatching eggs were killed too, but I am still apprehensive
about using an insecticide for an extensive period of time. My Derm
said it was safe. The Doc from the abstract said it was safe too.
I think this treatment helps the Chinese meds by wiping out all the
adult mites that would otherwise continue to cause some problems deep
in my skin untill their short pathetic lives are over. It states on
the tube that "one application is generally curative" My only
problem with the permethrin other than just knowing that it is a very
strong med is that it seemed to have made the tender skin around my
adamsapple sort of wrinkly. But that may have been about to happen
to me anyway since I am 50. I have always looked very young so its
just a bummer to have to give up my agelessness!! I have been able
to make wrinkles ALMOST go away with moiturizers, but I can't use
them with the Chinese meds except for the moisturizer in the X
cream. At least they say don't use anything with their meds. In
closing I must say that I continue to see improvement and have
greater faith in the Chinese meds as each day goes by.
Larry
PLEASE DO NOT send a message to the group to
unsubscribe or change your email settings for the
group.
to temporarily suspend email go to this url

-
Hi Sue, I am also in the states. I got it from my Derm. If you
read my original post, I went in to see him armed with abstracts
descibing the success another Doc had posted about using permethrin
5% to cure demodex type rosacea. So, I got a perscription for it.
It is normally percribed for Scabies, which is another infestation of
sorts. The stuff I have is manufactured by Clay-Park labs inc. Bronx
New York and came in a 60 gram (big) tube. It's too bad there
hasn't been any research on this because the biggest problem is
figuring out how to use it. My Derm said once a week for four weeks.
The Doc in the abstract said twice a day for two weeks, but I wonder
if these guys really understand the lifecycle and important details
of the two types of Demodex mites we are dealing with here. If it
wasnt so strong I would just use it twice a day for a month and be
done but I might just look like a prune afterwards!! That is why I am
just using it as a occasional tool to wipe clean the playing field
for lack of a better term and primarily counting on the steady usage
of the chinese meds. for the overall cure. Maybe a younger person
could use permethrin as a cure if their skin was more resiliant I
used the Z cream last night on all affected areas as usual. When I
woke this morning, my neck was all dried out again so I am
moisturizing it before I put on the X cream. I'm slightly itchy
around my neck and chest but much more normal looking there. I
suspect the itch is from the dead mites.
This is like fighting a war. I'm just glad that I have pretty much
won the battle on my face already. Now I just have to follow through
with the treatment there for two more months and along with getting
control of my chest and neck.
larry

Rosacea & Natural Progesterone:
http://www.natural-progesterone-advisory-network.com/rosacea-and-
natural-progesterone.php
If anyone tries this, please let us know how it goes!

Hey DD,
You look pretty clear in your pic. Have you tried backing off on the
accutane? You would be the one to know if you need it but I have
eliminated everything internal with the exception of vitamins and
herbs and feel no need for anything else... but then again I know it
can be a careful mix at times. My face is near perfect now, but I
have continued to have a lot of redness and itch on my neck and
chest. This all occured in the past year which was a particularly
stressful time for me and coincided with the general worsing of my
facial condition before I started the Chinese meds. Any way I have
continued to itch a lot in this area despite the Chinese meds. so
this morning I applied permethrin again and I must say that stuff is
amazing. I feel like I warned everyone away from it before by making
the statement that it was "very drying", but it really may be of
significant value. My neck and chest calmed down immediately. The
medical abstract that I got the idea from stated that the patients
were cured of rosacea with two weeks of a twice a day application. I
would think once a day for a month would be better to insure the
newly hatching eggs were killed too, but I am still apprehensive
about using an insecticide for an extensive period of time. My Derm
said it was safe. The Doc from the abstract said it was safe too.
I think this treatment helps the Chinese meds by wiping out all the
adult mites that would otherwise continue to cause some problems deep
in my skin untill their short pathetic lives are over. It states on
the tube that "one application is generally curative" My only
problem with the permethrin other than just knowing that it is a very
strong med is that it seemed to have made the tender skin around my
adamsapple sort of wrinkly. But that may have been about to happen
to me anyway since I am 50. I have always looked very young so its
just a bummer to have to give up my agelessness!! I have been able
to make wrinkles ALMOST go away with moiturizers, but I can't use
them with the Chinese meds except for the moisturizer in the X
cream. At least they say don't use anything with their meds. In
closing I must say that I continue to see improvement and have
greater faith in the Chinese meds as each day goes by.
Larry

Basilea Investigates Novel Antibiotic Class With Potential to Treat
Acne and Rosacea
http://www.rednova.com/news/display/?id=133716

12% alcohol seems very high for rosaceans...Dr. Nase writes that
alcohol is not good for rosaceans, both ingesting as well as topical
medication.
Anyone else had a great experience with said product other than the
author if the message? Just curious. If so, then maybe it can be
viable for some in our group, indeed.
Perhaps others are curious as well.
Mike

More specifically the "Diroseal" treatment?
My wife's dermatologist recently suggested an acne treatment
for her, and when she went to research it further,she came across
the company's rosacea treatment on their site (feelbest.com).
I am always looking for another option for control, so I am curious.
Thanks for any input.
Karl

I really don't have an answer for you there.
Your statement is logical.
I tried the Z-cream because Brady recommended it so highly, and I
am always looking for a better solution to my rosacea.
It definitely helped me, but I wouldn't say the results for me
were as good as they were for Brady.

I found this info below for anyone who is interested in Treating
Rosacea Homeopathically. Hope it helps! Knowing the ingredients they
use, is a good start! The ingredients focus on healing, boosting
immune system, cleaning the liver and the blood. Hmmm I think we are
on to something here! There are two formula's below, one for men and
one for women, both with related website links.
Rosacea Skin Formula Tincture, 100% Organic - 2 fl. oz.
This Rosacea Skin Formula was specifically designed to help heal
rosacea in females. Suggested Dosage or Use: 6-12 drops, 3 times per
day. Ingredients: Echinacea; Blessed Thistle; Barberry; Oregon Grape;
Astragalus; Pau d'Arco; R/O Water, 12% Alcohol. References: Herbal
Descriptions -- Berst, Truman, Master Herbalist Expiration:
Approximately 2 years from the date of purchase.

Karen,
Until you decide whether or not to use the demodex solutions,
have you also tried using fragrance free detergent, cosmetics for
sensitive skin like Rosaea Care, or Elizabeth Arden for sensitive
skin, stop using nail polish if you use it (--this was a big breakout
maker for me), switched to fragrance-free everything, and are
aware of other fumes that might be making your skin react.? Some
of us have had it for so long, that we made these changes years
ago and it is just habit now, so they don't often show up in the
posts. When I made these changes I stopped the worst part of
rosacea. To get rid of it altogether, I am using demodex solutions
and it seems to be working, but too soon to really report. Also, I
found that giving up wheat helped for me, as actually suggested by
the plastic surgeon giving me IPL (the IPL only worked for awhile,
by the way) . I assume you have already given up alcohol if you
drank at all. If I ever "cheat" and say to myself "What can one drink
a year hurt?" I pay for it for weeks with a bad breakout! I think that
lots of yogurt or probiotics helps. I even make a mask of plain
yogurt for bad flares and it calms it down immediately.
Also, like Larry, I am thinking that if demodex solutions
works...maybe...maybe I can go back to the ocassional coffee or
alcoholic drink (which I don't really miss) or sandwhich...who
knows?
Also, forgot to mention, that 10 years ago we pulled all the wall-to-
wall carpet out and have laminate and hardwood, because of all
the reading I did on formaldehyde outgassing. Red rashes on the
face was one of the symptoms. I believe our indoor airquality is
much improved, we all have fewer allergies in general, and I
recently read in the paper that the EPA is thinking formaldehyde is
more dangerous than they even thought before. So there's another
thing to consider, if you own your own home. I am still careful when
I buy upholstered furniture to check its formaldehyde level, but
furniture manufacturers have had to lower their outgassing
anyway. But if you have old synthetic-covered furniture, it might be
a culprit. I think that I can actually smell the bad upholstery.
Well, anyway, just keep trying. Doesn't it drive you crazy that your
friends without rosacea don't have to avoid all this stuff? They can
make themselves glamorous with the most sophisticated
cosmetics, hair gels, fingernail polish to make their hands look
pretty as they down their margarita in their wall-to-wall carpeted
house. Lucky for me, I've always looked better without makeup
anyway, and my friend assume I don't wear nail polish because I
make and teach pottery which just ruins nail polish anyway.
Anne

Karl,
Thanks for the tip on ZenMed. I have set up a
database for ZenMed and would appreciate you
doing me a favor and entering your comment
about ZenMed in the database at this url
http://www.rosacea-diet.com:80/tinc?key=XQYOfJXa&formname=zenmed
thanks,
Brady

I have been creating a list of different rosacea
databases so that rosaceans can comment on
different rosacea products, physicians, IPL, etc.
at the following url
http://www.rosacea-diet/html/databases.html
Please enter your comments in what database
appeals to you.
thanks,
Brady Barrows

I have been gone for awhile and I come to check my
e-mail to find that Brady is now going to charge for
his diary? Why would anyone buy this diary when we do
not know if DMSO-Fluconazole is even curing him?
Brady, BIG MISTAKE!!!!!!!!! I think you should find a
cure...be cured then sell
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am disapointed and when I went to read the reasons
why I get Adobe which takes too long to open so I will
not open and read it. I thought Brady cared and was
really sharing his experiences with us but now I think
Brady just wants a tax write off and lots of
$$$$$$$$$$$$$$$$!!!! I'm disappointed! But I'm okaY!

In the last 7-8 weeks I've had two photoderm treatments. While the procedure was
relatively painless and has taken the redness away by about 80% (which I
understand is good for only two treatments), I am still breaking out. I have not
noticed much of a difference as far as my breakouts go. Anyone have any insight?
I've been driving myself crazy trying to modify my diet, cut out sweets,
caffeine, etc., but I can't quite pinpoint what this is. My derm put me on
azelex cream for the breakouts (he said I have acne plus rosacea & therefore
need to use something sensitive enough for the rosacea), but I'm not seeing any
results. While I'm happy with the photoderm results, I'm not happy with the
breaking out still. I'm starting to be convinced about this mite thing - any
thoughts?

Hi guys...RE: Zinzghou Ointment, if we have rosacea, then is it for
sure from mites as the ZZ says it treats mites?....Is there a
possibility that some of us have rosacea, but not mites, and maybe
the ZZ won't work?...Just wondering if I (and all others interested)
should do the mite experiment touched upon on the demodex site..
THANKS!..Reason I'm asking is the redness is more intense than it's
ever been before, and a darker, deeper red all across my face...and
is this normal (as I know sometimes our face gets worse before it
gets better)
Thank you again, and hope I am inquiring for others who may be
interested in trying the ZZ as well.
Best,
Mike H.

Hi Sue,
You are correct that the metronidozole, will not kill the mites, but
it does suppress them. Thats what the Chinese use that product
for. You cant use the Z cream during the day as it looks like
toothpaste on your face. The X cream will keep the mites in check
during the day when they are normally less active on the surface of
the skin because they dont like the light. The idea is to keep
something on your face all the time so they dont have a chance to
mate. Rosula would be an alternative med for daytime use but it does
have a slight sulfur smell to it. I have rosula and it works very
well, I but choose not to use it because of the smell. My Derm said
to use it at night and nothing during the day...??? LOL (well what
would you expect from a Derm!!) In my work, I think people would
notice that faint sulfur smell when they get near me so I am using
the x cream. It is very soothing and makes you look good but has
more of a moisturizer base than Metrogel. I had the same problem as
you with metrogel... it just stopped working, but now that I am using
the Z cream at night I can occasionally use metrogel again and it
works great just like it used to. So, maybe when you start using
the Z you will have better luck with the metro or the X cream. I
like metrogel if I am going out .. just something about it makes me
look better. The X cream was 2% metronidozole and now I heard that
they are making it 3%. They must have determined that 3% worked
better. Metrogel is .75% so it is not even 1%. Their(chinese)
system works better than anything else I have tried and I was at the
end of my rope when I started with their stuff. So far it has turned
my life around as far as coping on a daily basis and it has the
promise of a cure. It is pricy but as Anne noted so are Derm visits
and everything else out there. This atleast works. I have not been
breaking out, enlarged pores are gone, I have been eating everything
and have stopped all internal antibiotics. What a blessing that
is. I was on the rosacea diet with almost no carbs., and everyone
thought I was dying/wasting away. My cheeks were sunk in and I was
looking anorexic. At that point I simply had no alternative to
preserve my appearance. Now I am looking good and am all filled out
again. I think it is good that you are cautious and I dont know what
your exact symptoms are but this med is working for me and I cant
help but recommend that you try it and get the acrid soap too. I
wash my hair and face in the shower with it every morning to get the
Z cream off. Then I use face doctor shampoo followed by a light
washing of my face with cetaphil soap. Then after about 15 mins I
apply the X cream and I am good for the day. At bedtime I take a
shower using the acrid removing soap and then paint all affected
areas and a little beyond with the Z cream. When I wake up with the
z cream on, my face is very calm and I tend to look better as each
day passes. I also wash my bedding every two days to make sure there
are no mites on them.
I am also taking the B2 supplement that they recommend as part of the
therapy.
Larry

Brady,
Brady,
Thank you kindly...Yes, I agree that diet is indeed imperative to
helping to control rosacea..I am pleased to be able to go out to eat
with my not-so-thin friends, and we basically eat the same
foods!...It's kind of cool, and trying to have some levity and
perspective, now I know how they must feel and how one, because of
genetics or because of a disease, must alternate lifestyle and
eating habits in order to cope....
As well, maybe my face has become more reddish the last few days
because I have been sink-rinsing the Z-Ointment off with Linda Sy's
Oatmeal Cleanser...I could use the Sulfur Soap to rinse off instead,
yet I have ordered the Acarid soap and should get here in a few days
so I will indeed rinse off with that when it gets here...Until then,
any suggestions? Is this better than rosacea ltd-iii, or I'm sure
as you feel, Brady, it all depends on who you ask...
I will also chronicle my experiences as you did, Brady, as it is at
least somewhat fun, and it can be helpful to others...which is
always rewarding...
So thanks again, and going to enter my first entry right now!
Mike H.

Anne and Larry,
I went to the link you provided. I only have one question.....Have either of
you used metronidozole (flagyl) lotion prior to this product? These products
have this in them. Are you sure it is not the metro doing the trick for you
both? I have used metrogel, metrolotion, etc. At first they worked then after
many additional flairups, began to stop working. I found out that flagyl is one
of the meds that easily looses its effectiveness after prolonged use.
I have used the metrodonizole(flagyl) and am now immune to this. Recently it
did nothing for me so I just am being cautious before I would spend the money.
thanks,
Sue
anne@... wrote:
Susan,
The stuff I was talking about was the same stuff Larry is talking
about: go to demodexsolutions.com and reread Larry's recent
posting. When I did the initial research, the thing that hooked me
was the mention of itchy eyebrows, eyelashes and the outer lobes
of my ears, along with the other rosacea symptoms. I definitely
could relate to those itch spots. Decided to give it a try. It appears
pricey at first glance, but all you have to do is remember the price
of one derm visit with meds and it puts it into perspective.
Larry,
I didn't mean I only put it on one side, I meant I have one side of my
face that is worse than the other. The less-worse side ("better
side") is looking great now, the other side has a ways to go. I use
the same amount of the creams on both sides.
Anne
PLEASE DO NOT send a message to the group to
unsubscribe or change your email settings for the
group.
to temporarily suspend email go to this url

Susan,
The stuff I was talking about was the same stuff Larry is talking
about: go to demodexsolutions.com and reread Larry's recent
posting. When I did the initial research, the thing that hooked me
was the mention of itchy eyebrows, eyelashes and the outer lobes
of my ears, along with the other rosacea symptoms. I definitely
could relate to those itch spots. Decided to give it a try. It appears
pricey at first glance, but all you have to do is remember the price
of one derm visit with meds and it puts it into perspective.
Larry,
I didn't mean I only put it on one side, I meant I have one side of my
face that is worse than the other. The less-worse side ("better
side") is looking great now, the other side has a ways to go. I use
the same amount of the creams on both sides.
Anne

As Brady says, everyone's case is a bit different. I
have found that anything that stings is going to start
flushing going and worsen the rosacea. This was
something that, at one point, I read in Nase's book
and after I read that, I finally started thinking back
to my experiences and realized I needed to listen to
my body - funny how long it can take to start doing
that - I guess, better late than never! Deb

-Anne,
I am glad to hear that are using the chinese meds. Another person to
compare notes with can only help. It's really hard to tell at this
point but Walter seems so confident and it does seem to be working so
at this point I am putting my bet on Demodexsolutions and will hope
for the best.. Funny though, I have the facedoctor stuff too... I
have a big box of stuff... it's crazy but I am going to win this war
some how!!
Your one-side of the face experiment is interesting, but you better
go for all effected areas now and a little beyond to be certain you
are conducting a complete attack.
Try applying a very thin mud mask. It helps to rid your skin of the
mite debre.
Larry

I have found that a light spray with Zenmed Nutrient Boost Spray
immediately before applying the Z-cream helps to thin it so it spreads
better.

I found the Z-cream to sting for the first couple of minutes
but actually gives 'cool' feeling after that. (I believe there's some
menthol in it). Overall, I'd say it works pretty well.
Winter is usually worst for me as far as flareups are concerned.
I started the Z-cream late fall and so far winter hasn't been too bad for
me.
Good luck.

Some people may be interested in this
organization. It campaigns for all the health
issues so important to us that big corporations
with help from the government are keeping from
us, like banning beneficial and inexpensive
homeopathy substances and medicines from being
sold here, treatments that cure from being taught
in medical schools, etc., etc. By joining cost
free you get email updates on issues they are
working on that are important to getting more
health alternatives and preserving the ones we
have.
http://campaignfortruth.com/priorities.htm

Hi, Susan,
You have not read enough on the "rosacea-cure" board. Please return
there, and study some. You will not regret taking the time, if you
want to get rid of your rosacea. I noticed you joined and
unsubscribed rather quickly recently. Your questions show that you
did not read enough. :-)
[DMSO + fluconazole] does not "kill" ANY of the skin. In fact, it
penetrates not only the entire skin, but some miniscule percent of
what is applied even enters the bloodstream, and has a "whole body
effect", that is even curing ocular rosacea, even though this med is
not and most likely should not be applied directly to the eyes.
There is also good reason to know that this med even penetrates each
individual human skin cell, which may be the main reason it cures
rosacea.
The only thing I ever "tried" was Metrogel, for many years. It was a
joke. Doctors do not know why they prescribe it, and no one knows
what it "does". Rosacea LTD, although it is "advertised" a lot, is
even more of a joke. Since no one knows what causes rosacea, ALL the
so called "rosacea treatments" are at best "stop gap" means of taking
your money.
Why is [DMSO + fluconazole] different? Because it cures rosacea. :-)
And no one knows exactly WHY or HOW it is curing rosacea, although I
have my opinions, which are unimportant.
My case was advanced, after 15+ years, with pustules on my nose.
The number of times you will have to apply this med depends on your
individual case of rosacea. But the curative results that rosaceans
are having with [DMSO + fluconazole] appear thus far to
be "permanent". As for "preparing the skin", the "Summarized
Directions" answer this question, at:

Anne,
The demodexsolutions.com site says that it might get
worse before better and that a three month regimen is
needed to clear rosacea. I too tried the X cream which
is what they recommend for daytime application since
it blends in better than the Z cream. However, when I
tried the X cream my rosacea turned bright red where
I applied it and immediately stopped using it. There
is an X-Factor in rosacea, pun intended
http://www.rosacea-diet.com/html/xfactor.html
What works for one may not work for another. But the
main point it to find what works for you. Yes, I think
the Rosacea Diet is better than anything else I have
ever tried and is better for overall health since it lowers
the insulin and makes a glucagon dominant metabolism
which is better for overall health. Eating vegetables
and other complex carbohydrate is better too and I
keep my daily carb count to less than 150 grams a day.
Brady

to mike h,
i tried the zhongzou cream along with the companion creme that they
recommend. i used the zhongzou cream every evening, since it was more
noticeable and
did sting and burn my eyes, and used the other cream each morning. altho
brady seems to have had good results with them, i did not. i used both for a
month, and my rosacea not only got much worse while using them, but my skin
became very dry and flaky as well. i thought this might just be a coincidence,
so i stuck with the regimen anyway; after a month, however, i decided to
stop and see what happened, and my skin has since been much clearer, with only
minor rosacea reddening.....
i have still found that diet, specifically avoiding carbs and sugars, seems
to help my skin the most. also drinking a lot of water.
annette

Ann,
Where did you order these creams and what are they specifically called? I would
like to try something like this for mites. I have read Dr. Anderson? posts
about kwelleda for mites? Did you try this product? Or has this been proven
not to work?
I am new to this list and have already found so much info! I don't know where
to start.. could you tell me what you have already tried? I have a feeling as
with everything with me, it won't be just one theory. For me, it might be mites
and fungal. My derm has me on a never ending Flagyl pills and it is starting to
not work at all as is all of the other sulphur stuff he has me on.
I need to get much more aggressive and he is not offering me anything but
expensive photo/lazar stuff.
thanks,
sue
anne@... wrote:
Larry,
Thanks for the info and the new word to start researching. I've
done some reading, not a lot yet. The rosacea-like response
according to some of the articles is a localized immune response,
not a sign of a weakness of the immune system, nor a sign of an
immune disorder like lupus (which my aunt had, which is why I get
a little nervous when I think of some connection to a possible sign
of the immune system getting out of wack. Of course, I ruled that
out with my doctor early.)
The parallel to poison ivy is that we are obviously not the same
and though some of us might be responding to demodex mites
with redness and postules and itching, the fact that others also
have them and have no reaction doesn't mean it is not a bonafide
theory to look into. In other words, if I used over-simple logic on
poison ivy: "That rash can't be a reaction to poison ivy because,
look, I can rub myself in it and not get the same rash, therefore you
are wrong." You can right away recognize the faulty logic.
Some people are trying to use that faulty logic with demodex mites,
saying that studies have shown that many people have them and
do not have the rosacea-like symptoms, therefore it can't be a
cause of those symptoms. Catch my drift? But in your case, it is like
preaching to the choir since the F/Z creams are working so well for
you.
I also ordered them and started 10 days ago. I wasn't going to post
anything until I started noticing some change, but today I am
noticing a big change on the side of my face that was the "better"
side. No postules, just a slight rosy glow that is more like the early
stages of rosacea. The other side of my face still doesn't look so
hot, with some postules, but I can still see an improvement and it is
still early. I also use the Face Doctor soap and was using it for
several weeks before starting the Demodex solution F/Z creams.
Maybe some day I, too can eat a bigger variety of foods and
beverages.
Keep posting your developments.
Anne
PLEASE DO NOT send a message to the group to
unsubscribe or change your email settings for the
group.
to temporarily suspend email go to this url

Mike,
I have been using the Zhongzhou Medical Ointment
since October 1, 2004 and have chronicled this in my
diary
http://www.rosacea-diet.com/html/diary3.html
It has worked incredibly for me and my rosacea is
completely controlled and my face clear. Yes, when
applying it there is a 'menthol' effect and it causes my
eyes to tear. I do not feel any stinging at all, just this
cool menthol effect. The only side effect I have found
is tearing. So I put it on just before bed and close my
eyes to reduce the tearing to minimal. The Z cream
is like toothpaste so it is nearly impossible to put it
on in the morning since it is very difficult to blend into
the skin. The best method is just before bed and then
wash it off in the morning with the Acarid Soap which
is also sold by www.demodexsolutions.com. I wash
and shave with the Acarid Soap which I think helps too.
I am still using my Rosacea Diet as well. My Rosacea Diet
and the Z cream doesn't cure rosacea but it sure is the
best method I have come up with so far. I highly
recommend this regimen.
Brady Barrows

Hi, guys...I am using Zhonzou medical ointment...Have been for the
last few days...Does anyone know if it is supposed to sting when
applied?...As well, how effective might this treatment be?...Brady
or anyone else who is or has used this ointment, please let me know
if it was viable and helped them...
Obviously diet is imperative, yet treatment helps as well.
Thanks in advance.
Best,
Mike H.

Larry,
Thanks for the info and the new word to start researching. I've
done some reading, not a lot yet. The rosacea-like response
according to some of the articles is a localized immune response,
not a sign of a weakness of the immune system, nor a sign of an
immune disorder like lupus (which my aunt had, which is why I get
a little nervous when I think of some connection to a possible sign
of the immune system getting out of wack. Of course, I ruled that
out with my doctor early.)
The parallel to poison ivy is that we are obviously not the same
and though some of us might be responding to demodex mites
with redness and postules and itching, the fact that others also
have them and have no reaction doesn't mean it is not a bonafide
theory to look into. In other words, if I used over-simple logic on
poison ivy: "That rash can't be a reaction to poison ivy because,
look, I can rub myself in it and not get the same rash, therefore you
are wrong." You can right away recognize the faulty logic.
Some people are trying to use that faulty logic with demodex mites,
saying that studies have shown that many people have them and
do not have the rosacea-like symptoms, therefore it can't be a
cause of those symptoms. Catch my drift? But in your case, it is like
preaching to the choir since the F/Z creams are working so well for
you.
I also ordered them and started 10 days ago. I wasn't going to post
anything until I started noticing some change, but today I am
noticing a big change on the side of my face that was the "better"
side. No postules, just a slight rosy glow that is more like the early
stages of rosacea. The other side of my face still doesn't look so
hot, with some postules, but I can still see an improvement and it is
still early. I also use the Face Doctor soap and was using it for
several weeks before starting the Demodex solution F/Z creams.
Maybe some day I, too can eat a bigger variety of foods and
beverages.
Keep posting your developments.
Anne

You must keep in mind the dose on the bottle is the "DV" or daily
value, which simply put, is the amount you need to stay alive. As
with most americans our diets are very deficient, especially in
selenium, especially if you are NOT eating organic food.
Sounds like you need to get yourself a good alternative medicine
book to have at home as a reference. Prescription for Nutritional
Healing is a good all around reference for questions like these.
Also you can go online to many alternative medicine sites and check
this out. Dr Weil has an excellent site, just enter selenium in the
search area of his site and i am sure lots of info will come up.
Noreen

A current poll is running at the group site
which asks the following question:
Has the Rosacea Diet helped control your rosacea?
79 in the RDUSG have responded to this poll and
here are the results:
Yes - 45 Votes - 56.96%
Some - 28 Votes - 35.44%
None at All - 2 Votes - 2.53%
Did not try it - the Rosacea Diet is too difficult - 4 Votes - 5.06%
Made it worse - 0 Votes - 0.00%
92.4 % said that the Rosacea Diet helped or at least helped
some control their rosacea, which is very good odds
considering that only 2.53 % said no and 5 % did not try it.
If you would like to participate in this poll, please go to
the group site

Hello Anne,
I will attempt to answer your questions. As for the info on immune
response, search for Entrez pubMed and then search the site for
demodicoisis. You will find several abstracts from medical journals
referencing the immune systems role. One states that
immunosuppression follows rather than precedes the clinical
manifestations of the the disease.
From what I am understanding, excessive sebaceous gland secretions
may predispose one to a mite infestation. This may explain a skin
type cause. There are many abstracts in the above referenced site
which give limited but helpful info on this subject. You would have
to pay to read the whole articles but much about the studies can be
understood from the abstracts. You may be otherwise very healthy but
not able to fight off this parasite, especially when it has colonized
in your skin and is capable of manipulating your immune system. It
is also suspected that the rosacea-like condition of Demodocisis is a
result of the immune system trying to fight an irritating chemical
coming from a bacteria residing in the demodex mite.
Im not sure if there is any relavence to the poison ivy connection
except that it may be a reaction of the immune system also.. Just
guessing.
Hope this helps. Read through Entrez and please share if you find
anything notable.
Larry

To Brady Barrows , I have just recently joined this group and am a
little concerned about the dose of selenium you suggest to take , as
on my bottle it states that a daly dosage of 100mcg should not be
exceeded ,and that it is toxic in high doses. Could you please tell
me where you came up with the 200mcg dose and reassure me that it is
safe to take that amount,thankyou.

I would be interested to know where you read about a connection
with the immune system and rosacea. I need to read more. I'm not
in the field of medicine so I am probably over-simplifying here, but
if I had a weak immune system, why am I so healthy other than my
rosacea? I've always eaten very well and take important
supplements. I am told I look 15 years younger than I am, I am very
active (mountain biking, etc.) and rarely sick even though I am
exposed to one of the largest germ pools around because I am a
public school teacher. So why would my immune system only go
beserk on my face? (I'm 47 and have had rosacea since my early
20s.) I'm wondering if medical researchers also consider that it isn't
a weak immune system per se, but a predisposition of a type of
skin. (I don't mean the same skin color or ethnic background). Just
as some people have a predisposition towards weak knees, or
irritable bowel syndrome, or weight problems, high blood
cholesterol, etc. Perhaps, if it is demodex mites, it is just that we
have a predisposition towards being oversensitive to them. As a
mother of two active boys with woods on our property, I find it very
interesting that about 50% the kids who play with my boys in our
woods are predisposed to get poison ivy very seriously, while
anther 50%, including my own 2 boys never get it even though it is
all over our woods. I have to steer some kids away from it and
some could almost roll in it and not be effected. The mothers
always know if their child is sensitive to it or not.
Anne

I recommend IPL, yet for those who have not gone yet, please keep
the following in mind:
Make sure you look at Brady's list for physicians.
If possible, go to those who were specifically trained by Dr. Bitter
Sr. in Los Gatos, CA or even his son, Dr. Bitter, Jr. as they
invented the procedure and the equipment.
Yet still make sure you don't just blindly accept whatever the
Doctor says and recommends, but you act as a vocal and proactive
participant in your treatment and improvement.
Too often we take the words of Doctors as unyielding truth, but as
we know, lots of us were misdiagnosed with acne for years and were
put on the wrong treatments by medical professionals.
This disease has certainly made me a lot more aware and with the
advent of this great internet, we now have lots of access to
information, and we should use it to our benefit, and not simply let
the established medical elites use their knowledge without being
watched as it may end up being to our detriment.
For example, don't let a Doctor be too aggressive with your
treatment or be too light with your treatment. Take notes if
possible, and maybe let the Doctor know you are keeping a journal to
potentially help other rosaceans and perhaps if you have great
results, that would mean many referrals to that Doctor.
I may be re-hashing old information, but I feel it is important to
keep bringing up. Health is #1 and let no one get in our way of
great health.
As well, let me get off my soapbox now and head off. I have been
MIA for the last little bit as my PC was acting up. Yet now I have
a Mac that I like and a Sony laptop, both of which I heartily

Nadia,
Dr. Mechino recommends 250 mg of oil of
oregano taken internally twice a day as well
as using it topically. No one knows who to
dilute the oil of oregano topical oil or if it
should be applied straight from the bottle?
The article in Dermatology times goes into
some other herbs he is using too which goes
along with your using other essential oils.
The link to the article is on my oregano page.
I tried the oil of oregano and it is on of the most
nasty tasting stuff I have ever used, leaving
an aftertaste for hours. I tried it in a glass
of water and it is not much better. The glass
still tasted like oil of orageno the next day!
I tried to get oil of orageno capsules but the
health food store was out of them. I feel like
finding empty gel capsuls and using the dropper
to put drops in a capsul to swallow the stuff
without tasting the oil. I haven't used it again.
The side effect, nasty taste, is not worth the
benefit to me. Besides, the Z cream works for
me anyway. I just wanted to add the oil of orageno
as part of my dialy supplements.
Brady

tymcc,
I understand your feelings and am glad
you were reading it. I wasn't getting much
feedback on the diary and thought no one
was reading it. My problem is that I am
out of time and money. I can't afford to
keep up the diary as a public service and
also do all the other volunteer work I am
engaged in. My volunteer life takes about
thirty hours a week and I have to make
a living. I realize you do no approve of
profiting from rosaceans and I respect
your feelings. That is why I formed a
non profit corporation for rosaceans who
have issues with profit. My diary is simply
a diary on my experience with a radical
new prescription drug for rosacea. You
can still get free information from Dave
Fleming and I have kept the links up
for that. I ignored Dave's directions
because simply when I got
the prescription it said 'Apply Twice
Daily.' Dave writes mountains of information
on the subject. When I went to Dave's

Brady! What the heck. We're all out here reading your diary on a
daily basis to see if the DMSO/floconazole is working, and now we
have to pay in the final stages of treatment? I used to think Dave's
assertions about rosacea profiteering were a little overblown, but
now I'm starting to take his side. Plus you didn't even come close
to following his directions in terms of the frequency of
application. What is the deal Brady? I'm very dissappointed. The
suffering of people with rosacea is real, and profound. The positive
karma you could have generated is now waning quickly. I'm not buying
the book out of sheer principle, who cares about the ten bucks? Bait
and switch profiteering is what this is, plain and simple.

Hi Larry,
It's great that you have a positive attitude and have been trying
to find the right cure. Talking about immune enhancer, I had tried
one product contains Arabinogalactan, Maitake Extract, Astragalus.
I also thought that I needed to strengthen the immune system since
the skin not perfect anymore, but some yellow pus appeared on my chin
after I took the first dose- my immune system over-active or
over-sensitive to it (yellow pus is white cells plus the infection
stuffs). Then I dare not take anything that is good for immunity,
because it will drive white cells to my face that forms yellow pus
there. Some people say those who have rosacea or seborrheic
dermatitis do have an over-sensitive immune system and better avoid
taking anything that can irritate the immune system. Moducare might
be different with other immunity enhancers, it's expensive too, eager
to know how does it work for you. Good luck! Yvonne

This is amazing, when I changed my diet I unconsciously started using TONNES of
turmeric in almost every meal, I pored it all over the fried eggs and bacon, I
put heaps of it my fried tofu and eggplant dishes, I had a fair amount everyday,
I was (still am) so drawn to it, I loved the colour it made all the food, the
body knows what it needs if you listen to it, it is supremely intelligent.
cheers
trev :)

It has been said that taking Tumeric as a
delta-5-desaturase inhibitor will reduce
flushing. Glucagon also is a delta-5-desaturase
inhibitor which is said to reduce flushing.
Insulin actually facilitates the creation of delta-5-
desaturase, increasing the possibility of flushing.
My chapter in the book, Glucagon vs. Insulin, I
point that we need to change the body's metabolism
to a glucagon dominant one rather than an insulin
dominant metabolism to control rosacea. I learned
about glucagon being a delta-5-desturase
inhibitor at the following url
http://tinyurl.com/3quzg
If the above source is correct, it explains in
detail what I have been saying we need to do
to our diet to change over to a glucagon dominant
metabolism to control rosacea.
Brady

For all "rosaceans" members,
For the latest spectacular news coming out of Australia about [DMSO +
fluconazole], you will need to take a few seconds to join "rosacea-cure", to
access this info, at:

I have defined the X-Factor in rosacea as,
"the factor[s] of a regimen of treatment for rosacea
that is not fully understood when rosacea is controlled."
While I have defined the X-Factor as above, the
originator of the concept was Andrew Reid. You can
read my editorial on the X-Factor at this url
http://www.rosacea-diet.com/html/xfactor.html
I think the X-Factor will be with us until we find a
cure for rosacea.
Brady Barrows
group owner

There is a new physician database for
rosaceans at this url
http://www.rosacea-diet.com:80/tinc?key=XQYOfJXa&formname=MD
enjoy.
Brady Barrows
group owner

SD is Seborrheic Dermatitis.

A new IPL Physician Database has been
created for rosaceans at this url
http://www.rosacea-diet.com:80/tinc?key=XQYOfJXa&formname=IPL
Enjoy.
Brady Barrows
group owner

I have made a page on oil of oregano and
Dr. Meschino's treatment for rosacea
http://www.rosacea-diet/html/oregano.html
Brady

what is SD

Erin,
Welcome to the group. Thanks for your history and
hopefully this will be your 'last stop' but probably you
might have a couple of more stops to go. First is to
remember the Rosacea Diet is just thirty days. It may
prove to be very difficult for you, but keep remembering
that this is only thirty days. Do your best to follow the
plan. Drink lots of water. Keep reporting to the group.
You have lots of support here because everyone can
relate to your experience.
Brady Barrows

Dear Erin
The first thing I did after reading the book was to evaluate my daily foods
for carb and sugar content. That process shocked me to the core because I
saw that I was consuming about 200 grams of carbs just for breakfast. So
you can well imagine how many more carbs I had by the end of each day.
I just could not throw all my food away, so I kept graduating my portions
down until I
got to 50 carb grams. This gave me time to be inspired about alternate
foods, to make
dietary changes and psych myself up to follow the program 100%.
I had amazing results at the end of 30 days....I kept looking in the mirror
to make sure
I really had a soft and Rosacea free face. That was 3 yrs ago and I still
maintain a clear
face and have remained very cautious about my foods...even to continue
taking my own
foods to family gatherings because no one will accept that my rosacea was
due to diet.
I can now eat small amounts of sugar and exceed the carb limit of 30 grams
once in a while
without breaking out. I am so very grateful to have the knowledge that
Brady has published
for all of us to benefit from.
I know you can do it, be patient with yourself and know that the Rosacea
Diet works.
Lee

My SD was misdiagnosed as rosacea. SD and rosacea can be co-existed,
so I would share my experience here. I have mild itchy scalp. I have
been using Nizoral shampoo (2% Ketoconazole, leave on for 3 to 5
minutes), Selsun Blue and ZNP Bar (leave on not necessary). I used
either one of them twice per week but it did not help much, recently
I use it every other day and it helps. Th pharmacist told me we can
only use Nizoral twice per week, but the doc said once daily is okay.
The key is: don't just stick to one product forever, change to
another one after a few months. Like bacteria, fungus has resistance
to any fighting.

This is my first post and Im not sure what to say......so I will
just tell you who I am!
I am a 29 year old mother of three girls and I live in Northern
Maine. I went to a Derma. early last year sometime and he put me on
medication for both my acne and rocacea. The acne medicine did not
work so he put me on a higher dose of another. The rocacea cream
would burn my face if I did not put the right amount on. So I went
around with a sun burn alot. (Thank goodness it was summer so I
didnt look that odd.)
The acne medicine made me VERY dizzy so I stopped it all.....and I
havent gone back to him since and I dont want to.
Right now I use a cleaner, toner and replenisher on my face that
seems to lesson the redness and pimples but trust me its not gone.
This is my last stop to try to control my rocacea.
I want to do this but now that I look at food lables "sugar"
is "everywhere"!!
I know I will need help in cutting all sugar.
I think that is enough about me.......I think I could go on and on!!
Erin

Good luck with it! Wow, a dermotologist who actually listens to their patient
and is open to treatment reasearch out there! That one is a keeper, Larry. My
hmo derm just brushes anything off that he doesn't want to hear, which
includes research and theories on rosacea. He's one of the "hand 'em
metrogel, tell 'em to avoid triggers, and send 'em home quick" derms.
Pam in DC

Hello Everyone,
I just got my prescription filled after seeing my Derm. yesterday.
I went to see him armed with briefs from medical journals documenting
the treatment of Rosacea as a mite infestation. To my surprise, he
was very agreeable, listened to my story of measured success with
DemodexSolutions meds. and my desire to utilize other western meds
which could potentially shorten the time needed to eliminate Demodex
F and B.
I walked out with a prescription for Stromectol which is used as a
human wormer as well as anything else thats eating you. I also got a
tube of permethrin 5% cream an insecticide which is most prominently
used for scabies but which has shown itself to be a true mite
killer. He had given me some samples of Rosula which is a new sulfur
topical that goes on clear and is specific for acne and Rosacea, so I
got a script for that too. I used the rosula samples yesterday
afternoon and by evening my skin had smoothed out nicely. I had
intentionally tried to flare my skin by eating offensive foods, so I
could see the effect it had. So far so good with that. I just took
the Stomectol 30 mins ago. My Derm said I could have a reaction to
the mite deaths. I am ready for that--- any time your killing mites
in quantity you have the potential for a reactionary flare. Tonight
I will use the permethrin 5%. It is supposed to kill all the mites
also, and subsequent weekly treatments for four weeks should
eliminate newly hatched larvae. So I should know within a few days
if the mite theory is correct. Tomorrow, I will be taking a sauna to
wash out the mite debrae, and if I can truly stay clear at that point
Im going to be one happy camper!
Stand by and wish me luck! I will try to post my progress everyday.

In a message dated 1/30/2005 3:02:40 AM Mountain Standard Time,

The person who says it cannot be done should not interupt the person doing
it.
Chinese proverb

Hi this message is for Patty. NO I did not experience any tingly
feeling at all, I didn't feel anything when I applied the Face
Doctor Soap to my face. It has not made my face more sensitive. I
bought it about 3 weeks ago and about a week after I was using it,
my face started getting a bit better.
Take Care, Tracie

I just saw this post at r-s

Kori,
Thanks for your comment. Politics are a pain. I am
volunteering to the the director and board member
of the RRDi. I will not be getting any compensation
for doing this. None of the board members or the
Medical Advisory Committee are receiving any
compensation. The RRDi was created June 7, 2004
and was set up before the RRF was even conceived.
I have an editorial on the RRF
http://www.rosacea-diet.com/html/rrf.html
There is enough room in the rosacea world for
choices. The RRDi will offer another choice for rosaceans
to choose and input what rosacea research they may
want to have looked into by voicing their choices to
the board of directors, who are made up of rosaceans
too. If is very obvious what type of rosacea research
the RRF will engage in and the RRDi may be an alternative
to that type of research. Certainly there is a wide area
of research that is open. The NRS has research only on a
very narrow focus. Having two other alternatives to
rosacea research is a good thing for rosaceans. The
small part I have in this may help and I am very grateful
for the few who have joined me in this search for a
cure for rosacea.
Brady

Dear "rosaceans" members,
For comprehensive info, concerning Brady's current use of [DMSO + fluconazole],
it will just take a few seconds to join "rosacea-cure", to access this info, at:

Rosaceans have more choices now that there
are two other non profits on the block. Here
are the five choices
http://www.rosacea-diet.com/html/nonprofits.html
Brady Barrows
group owner

I am so sorry to discover politics in every part of our human affairs.
I see no conflict with you making money from all the time, energy and
knowledge which you have gained and generously shared.
All the best to you!
Kori Lane

I have used Udo's oil for about five years---- good product!!!!!

Why am I going on with the RRDi
and taking the lead?

-Hey great news! I'm happy for you and hope this continues. I am
going to do IPL, I don't have breakouts I have redness, broken veins,
and texture problems. Do you know what type of laser IPL is?
Have you seen noticeable improvement with Finacea? My dermatologist
has not given me any type of treatment yet because I have allergies I
have to work out first. I would like to try finacea or metrogel.
Nancy

The Rosacea Research Foundation has been
announced and I have an editorial on this
new non profit organization at this url
http://www.rosacea-diet.com/html/rrf.html
Brady Barrows
group owner

The guy that sold me the Prospective redness reducer knew exactly what
rosacia was. He said use sun screen all the time like 30. This was at a
department store

The products I was referring to are their sensitive skin line (calming
lotion, cleanser, moisturizer). I am the one who used it in the 80s,
not the one who recently bought it. I can't vouch for it now until I try
it again, but 20 years ago, I depended on it to keep my rosacea at
bay for at least 5 years. I was so mad when they discontinued that
line. I must have spent a fortune trying to find a replacement of skin
care that worked. I actually haven't found a good replacement,
although that might be because my rosacea reached a more
serious level, and so, I might find the EA products don't work this
time around. Twenty years ago the derms called rosacea
"sensitive skin" . I wasn't properly diagnosed until about 10 years
ago. Not one to buy from department stores, I am still amazed at
the knowledge that one cosmetic salesperson had about my skin
problems. She wisely told me to stop using fingernail polish and
makeup (a cosmetic salesperson said this!) because the
chemicals were contributing to my flare ups, and to start using EA
only on my face. She helped me more than the derm did.
I recently did an internet search and the products are at least
available on line, if not from your local department store.
Anyway, it might help some people and it is not that expensive.
Anne

Hi brady,
I wrote to the gentleman who
wrote to you about a facial cream with
caffeine in it, and wanted volunteers to try it.
I wrote him a email detailing my interest in trying his cream.
But he never replied back, and I have never received the cream.
Just thought you'd like to have an update on that issue.
And as far as everyone being cautious about this cream, that is
understandable,and respectible, however I must say I was disappointed
at how many people in this group, not believing the cream works,
without even giving it a try. How sad! It might be/have been the cure
everyone is looking for, and we pushed it aside!
(and here I am willing to try anything and everything to
cure/heal/improve my rosacea!)
People will reap what they sow.
Wishing you a great day,and thanks again for all
your hard work on your book, and at the RRDI, it is appreciated!
Sue

Okay, I'm posting my update. I was able to stop oral antibiotics in
February of this year. This is the first time I've been able to get
off of those in 4 years!!!! I look better now than I did on the
antibiotics. I've had 2 Vbeam treatments (for redness) and 2
Smoothbeam treatments (for acne and skin texture).
The only other thing I use to treat my rosacea now is Finacea one
time per day. My ocular symptoms do not bother me even though the
laser treatments had nothing to do with my eyes...except for maybe
reducing the flushing of my face as a whole.
I can drink alcohol a little bit now without getting huge pustules
and I can wear eye make-up and other kinds of make-up that I haven't
been able to tolerate since my pre-rosacea days.

In a message dated 1/26/2005 2:54:14 AM Mountain Standard Time,

i don't participate in this forum too much, every few months i drop
by, read posts that look interesting, and try to catch up on what's
new out there with we sufferers.
it has now been two years two months since i was diagnosed with
rosacea and two years nine months since i came down with it.
when people find something that has helped their health it is natural
to want to share, much in the same way a newlywed wants to marry off
all their still single friends.
we all have our own ideas of what causes our rosacea and we all have
tried things that have helped and things that haven't.
i know that every time i have tried something that helped my rosacea
i posted to this board to share, hoping to help others, and in kind i
have also commented on what didn't work for me.
i know am not a salesperson or a rep of any of the companies whose
products that have helped me that i have posted to this board about,
but i do concede that this kind of promotion happens. i am saddened
to see the direction this forum has gone on so many levels, and it
grieves me to see people getting jumped on so much lately, this is
not a good climate for any kind of forum for any reason.
i visited the new site that Brady started and i like that to join one
has to have been diagnosed. maybe a new limited forum like this will
bring back a more open, less cinical, more comfortable refuge for
rosacea sufferes to go and talk to one another.

Sure could use some volunteers for the RRDi
http://irosacea.org/html/volunteers.html
click on what you feel you might be able to
volunteer for to help rosacea research
if you haven't joined the RRDi, then please
join and sign up
Brady Barrows
Board Member and Founder RRDi

Indeed there is a difference between the types of caffeines found in
tea, coffe, and chocolate. Tea has theophylline, coffee (and pop)
has caffeine, and chocolate has theobromine. Theophylline's effect
is strongest on the heart and breathing, this, and the difference in
chemicals, are most likely why tea doesn't bother your rosacea like
coffee does.

"...There is no list of proven rosacea trigger factors
that in every rosacean produces a rosacea flare-up.
In fact, there is no proven single flushing factor that
in every case produces a rosacea flare-up in every
rosacean! Any flushing rosacea trigger factor or
tripwire only MAY produce a rosacea flare-up, no
matter who makes up the list..."
source
http://www.rosacea-diet.com/html/flushing4.html
This only proves more research is needed. Can you
name a single rosacea trigger that produces a rosacea
flare-up in EVERY rosacean? If you can, you are one
smart cookie and should get a reward of some kind.
Please post if you can come up with one.
Brady Barrows
group owner

It's hard to tell, but I don't think W is a rosacean. I think it's just sun. In
person,
he just doesn't look like he has it. Neither does Laura, but she's always
wearing makeup since it's at official functions. But Clinton always did every
time I saw him.
Pam in D.C.

I thought Pres Bush Jr. was

I have formed a non-profit corporation
for rosacea - check it out
http://irosacea.org
group owner

I am in there with you Sue! Deb
lornnslady@... wrote:Hello,
I am "aware" of the fact that both the medical community and patients alike
"claim" there is no "cure" for rosacea. I understand and respect the beliefs
of others.
However, I am not "accepting" this "no cure" philosophy in my own personal
life.
I believe I will be "healed". I will never accept the No Cure philosophy.
Call me dumb, air headed, stubborn, naive or a fool, or whatever you wish. I
just believe, that there is yet a cure to be found or shared, and that I
*will* heal.
I also believe that the mind is a powerful weapon or tool against such so
called incurable diseases. The way a person thinks, can result in "miraculous"
results.
Therefore, I would like to seek for other Like minded WOMEN With Rosacea (
Sorry Guys,) who believe that healing is possible. I would like to form a circle
of support, encouragement, and friendship for other women who believe
rosacea is "curable".
If this represents your beliefs, and you would like to be a encouragement to
others, or be lifted up in encouragement, please contact me.
Thank you for your time in reading this message, and thank you for respecting
my beliefs ( Dont bother emailing me telling me that rosacea is incurable.)
"whether you believe you can, or you cant, Your Right!"
Everhopeful ~
Sue
Peace Be With You....
Sue
<A HREF="mailto:lornnslady@..."

PLEASE DO NOT send a message to the group to
unsubscribe or change your email settings for the
group.
to temporarily suspend email go to this url

I read that President Clinton is a rosacean. I watched the whole
interview on 60 minutes last Sunday, just to look at his skin. Does
anyone know if it is true that he has rosacea? I thought he looked
really good and wondered how he keeps the flush under control being
in the spotlight like that.

Hi Sue,
I totally agree and support your email. I am totally convinced that my
breakouts/rosacea are caused by my mind - almost as a self-fulfilling
situation. I got rosacea when I was under a tremendous amount of stress.
I have been very helped with back pain by a book called "The mindbody
prescription" by Dr. John Sarno. He believes that conditions like acne
and rosacea are totally caused by the mind - as a defense mechanism to
pull the conscious mind away from mass internal rage and anxiety. The
unconscious has full control over all systems in the body and creates a
condition - can be anything - (pain is very effective) to attract the
conscious mind's attention - sounds a little far out - but I am now
totally cured of excruciating back pain - had it for 12 years and it has
gone through his exercises. I am thinking of applying his technique to
my skin.
I applied it for a short period of time when I was on vacation last
November - I ate what every I wanted (I normally avoid all sugar as I
have always thought it made me flush and break out)I constantly told
myself that the whole break out thing was nonsense - well - my skin was
totally clear - in fact glowing. I am going to try it again as I stopped
applying it.
Must go as I am at work
Suz

Hello, Sue...thanks for printing your views on rosacea. I, too, espouse the
belief that NOTHING is 'incurable' or too 'out there' to help. The mind-set
of success is a powerful thing. I also have rosacea, AND another 'fatal'
disease. When I learned I had rosacea, I was quite annoyed, as I know that not
a lot is known about the onsets and 'vacations' of rosacea. Instead of
being forlorn, I decided to simply do my own research and see what happens.
Not
that I would disregard doctor's advice, just that I do believe in the innate
knowledge of the body. It signals us when things are out of kilter, and it
signals when the body is healing. Some things are just common sense. Others
are informations gleaned from folk-lore, the medical establishment, etc. So I
use an 'Everything' approach. Faith is a very strong ally. We've heard the
term 'blind faith'. Well...when it comes to a seemingly incurable disease,
we may have no choice. Naturally, I do not count out the efforts science
makes; nor do I encourage people to just sit back and wait for a cure. We have
to do our own delving into the info that is available and weigh that with
common sense. The other dis-ease that I have has been presented to me with the
term 'always fatal.' Well, I've been 'normal' for quite a while now, and
I'm still alive!
Anyway, I wish us all good luck in our struggles with rosacea and other
seemingly 'incurable' maladies. Good luck! - Jyoti K.

what Elizabeth Arden product worked for you

Many of us who have the postules (some call it acne) started with
the flushing and blushing. Postules is the later stage of rosacea.
Postules seem to be a lot harder to rid ourselves of.
What worked for me for stopping flushing and blushing was diet
only. Once I stopped drinking coffee, cold or hot, alcohol, and
switched to a low carb diet with no wheat, I stopped flushing
except when I exercise. I used to just flush for no reason, probably
reacting to my diet (?). Giving up coffee was @#$!. I depended on
my one iced coffee/day in the summer to get me going. Now I drink
tea with no ill effects. I don't think its the caffeine as much as some
other chemical in the coffee. Or the caffeine is in a different form
and strength in tea and doesn't cause me to flush at all.
Its good to hear Elizabeth Arden brought back their sensitive skin
line. I used it back in the early 80s for several years with a lot of
success. Basically, my rosacea disappeared during those years.
And then they discontinued it. Nothing has worked for me like that
stuff. I'm going to run out and get some. Hope its the same forumla.
Anne

Hello,
I am "aware" of the fact that both the medical community and patients alike
"claim" there is no "cure" for rosacea. I understand and respect the beliefs
of others.
However, I am not "accepting" this "no cure" philosophy in my own personal
life.
I believe I will be "healed". I will never accept the No Cure philosophy.
Call me dumb, air headed, stubborn, naive or a fool, or whatever you wish. I
just believe, that there is yet a cure to be found or shared, and that I
*will* heal.
I also believe that the mind is a powerful weapon or tool against such so
called incurable diseases. The way a person thinks, can result in "miraculous"
results.
Therefore, I would like to seek for other Like minded WOMEN With Rosacea (
Sorry Guys,) who believe that healing is possible. I would like to form a circle
of support, encouragement, and friendship for other women who believe
rosacea is "curable".
If this represents your beliefs, and you would like to be a encouragement to
others, or be lifted up in encouragement, please contact me.
Thank you for your time in reading this message, and thank you for respecting
my beliefs ( Dont bother emailing me telling me that rosacea is incurable.)
"whether you believe you can, or you cant, Your Right!"
Everhopeful ~
Sue
Peace Be With You....
Sue
<A HREF="mailto:lornnslady@..."

Rosacea Caused by too much Cathelicidin?
An article in the June 1, 2004 Dermatolgy
Times by Michelle Stephenson quotes Richard
L. Gallo, M.D., Ph.D., who says rosacea may
be an 'abnormality in the innate immune
system...caused by too much cathelicidin."
Dr Gallo says, "if we believe that the
disease is caused by too much cathelicidin,
we could develop a strategy to block the
effects of the cathelicidins by making
molecules that mimic that protein but don't
have the same effects."
Several months ago I published the above
cathelicidin theory listing it along with
all the other theories on the cause of
rosacea on my editorial page at this url
http://www.rosacea-diet.com/html/cause.html
I find it very odd that no one has discussed
this theory or what to do to treat it or
given it much thought. Dr. Gallo no doubt
must have given this a lot of thought when
he published this in Dermatology Times which
is supposed to be the premier publication for
dematologists. Don't you think that there
needs to be more research on this? Why is
everyone silent about this?
Brady Barrows
group owner

About 3 years ago I heard about this oil. It is called Udo's Choice,
Ultimate Oil Blend. I bought it at a health food store where I live.
It costs about 18 dollars and lasts about 3 months. I take 1 or 2
tablespoons of it everyday. Two tablespoons when it is wintertime
because my facial skin becomes severely dry and flaky. It contains
flax oil, sunflower oil, sesame oil, medium chain triglycerides,
evening primrose oil, soy lecithin, rice bran and germ oils, oat
bran and germ oils, and tocotrienols. It is certified organic and is
made by Flora. This oil contains all the proper oils(omega 3 and 6)
and fatty acids that your body needs but does not get from our
foods. Now my face is not nearly as dry in the winter, I get less
papules. When I forget to take this oil for a week or two, my face
starts to flare up with papules and pustules and gets dry, so
obviously I am deficient in these oils. I know that it also helps
with my hormones, keeps everything in balance. So anyone out there
with dry skin problems too maybe this oil can help you or something
similar to it.
Take Care, Tracie

--
Hi Using a sauna can make you a little red and it may not be good if
you are a vascular case but when it comes to mites and mite debre I
can say after two sauna baths I am improving at a very fast pace. I
had a severe long term infestation and there has been lots of
swelling but the sauna releases all of that as you sweat profusely
through the very openings that the mites are living in. I have
always found relief in saunas but now with the Demodex Solutions meds
killing them it is just really helping to get control of what would
be setbacks due to the mite deaths. Hope that helps.

No I have never tried Demodexsolutions. But I bought the Face Doctor
bar of soap, and it is helping a bit! I started out with acne
rosacea first when I was around 25 years old. It was all over my
face, upper chest, neck and forehead. I was a mess!!! I have
gradually gotten it almost under control by myself. The weather here
where I live is now plus 35 outside so my skin is breaking out in
papules around my nose from the heat, but not bad. The blushing of
my face came later. I am now 37 and I faithfully takes vitamins
everyday. B-50 Complex along with C and Calcium-Magnesium and this
also seems to help my skin.
Take Care, Tracie